Family Life

Race against time as Dublin family fight for 7-year-old's life-saving drugs

Seven-year-old Vincent Lyons from Dublin loves dinosaurs and going fishing with his dad.

An intelligent, funny and happy boy, his family's world fell apart when in January he was diagnosed with Duchenne Muscular Dystrophy. 

DMD is an inherited genetic disorder, it stops his muscles from making the proper proteins needed for muscles growth, meaning that his muscles will weaken over time. 

Eventually, little Vincent will need a wheelchair and may face further health complications as his heart and lungs will be affected. 

Vincent wants to be an archaeologist when he grows up, but at the moment there is no cure for DMD and there are no treatments available in Europe. 

However, a drug is available in the USA which is available to ship to Ireland to help with the protein loss. 

The staff of Temple Street Children's hospital have agreed to administer the drug, but that means that the Lyons family will have to buy it themselves, for a whopping  €441,000. 

The family are now appealing for help through Victory 4 Vincent campaign and Gofundme page.

Time is of the essence for Vincent as it is essential that he receives the drug while he is still able to walk. 

All the fundraising will go towards the first 13-week course of treatment, but this is just the start of a very long journey for a special little boy. 

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