Big Kids

Kind stranger turns mum's poem about terminally ill son into a song

Five-year-old Toby Harthorne suffers with a form of muscular dystrophy known as Duchenne MD. 

At the moment, there is no cure for the condition. Toby's mother, Charlene Harthorne says that her son immobilised by around eleven years old, and will more than likely go on to suffer organ failure.

“Toby will lose his life to this so we make every moment count now,” Harthorne told The Huffington Post. 

To help her cope with the grief of knowing the inevitability of Toby's death, she penned a poem. 

She originally planned on keeping it in a family memory box for years to come. 

“The poem contained my feelings about how Toby is too young to understand, but I need to be strong for him, no matter what happens,” she said. 

Eventually Harthorne decided to make the poem public, by sharing it on Facebook. 

There it was picked up by music producer Chris Molloy. As a parent himself, he was touched by the poems heartfelt contents. 

“To be honest it was a spur of the moment thing, I saw the video and it touched me, because I have kids too."

He commented on the post, offering his services to turn it into a song. 

Harthorne added: “Chris is just a lovely man that took it upon himself to make the poem into a song.”

With the help of singer Jaynina Bambi Dee Andrews, they created Too Young, in aid of DMD awareness. 

“If this song can help in any way then it was worth it,” Molloy adds. 

According to the NHS, Duchenne MD is "one of the most common and severe forms" of muscular dystrophy. DMD usually affects boys in early childhood with life expectancy no higher than 20's or 30's. 

Harthorne has set up a Gofundme page. They hope to raise enough money to give little Toby a wide array of fun and memorable experiences before he becomes wheelchair bound. 


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