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We have an appointment on Thursday with my dds paediatrician for her 4 month check up. She was born 2 months early. (she is 6 months actual age, 4 months corrected)
I have noticed she is very floppy, can't support her own head or lift it off the ground. She also can't bear weight on her legs and uses one side of her body more than the other.
From everything that I have read it seems she may have cerebral palsy.
My question is, what's the next step? When we see the pead thurs and tell her of dds problems, what is she likely to do?
I'm worried for her future. How/when will we know the extent of her problems-like will she walk etc?
Is it just a matter of wait and see how she develops or will the pead have some idea what's in store for her?
Hope this makes sense.

Awwww love, don't panic yet or get ahead of yourself.

Speak to the peadiatrician, might just be taking a wee bit longer with head control etc due to being prem.

Has district nurse or gp expressed concern?

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Thanks. The nurse said she should be Holding her own head up at this age and to see what the paed had to say!

Not all babies do though all develop differently, my younger brother was very prem and had a lot of signs pointing towards CP, was even diagnosed with it at some point as it was in his medical notes.
He didn't though, just took him longer.

Think it might end up a case of wait and see though. Maybe ask about physio referral see if there are any exercises you can be doing with her.

Good luck.

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Thanks louii x

Reading your thread brought back some horrible memories of a time when I was so worried about DD. Paed suspected CP but I now have a very healthy 2.5yo who you would never know was hypotonic (sp) at birth. Our worry only lasted a week and she was released from hosp quite quickly so we just had to 'watch' her for a further few weeks. My BIL & his wife went through something more similiar to you in that it continued for 6 months of her being very floppy - again now a healthy 4 yo

I am not saying to you that there is nothing wrong or that it is not CP but I wanted to give you some hope that it might not be. In both of our cases it wasn't

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DS 4 - DD 3

Thanks for that, it has put my mind at ease a little !

I hope things work out and you DD is fine. Our DD was very floppy at 3/4 months. Didn't hold her head up, didn't use her arms much (one arm in particular seemed to hang down at her side). We were worried about CP too.

We went to an osteopath who was amazing and she also had physio.

She didn't put weight onto her feet until she was I don't know - 10 months or something.

Anyway she is now 3 and perfectly healthy, robust and strong. There isn't a thing wrong with her. So don't panic, it could be nothing.

DS had problems at birth and we were told hat he could have CP but time would tell. He was way behind his peers meeting his milestones but did everything in his own time. He didn`t hold his head or weight bear for ages, think he was about 6 or 7 months. He didn`t walk til he was 2, talk til he was 3 but he got there in the end, just in his own time. He`s 13 now, a fine strapping lad and not a bother on him. Try not to worry just yet , hopefully she`ll be fine x

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Thanks a lot for those replies. She had a tough start and a brain MRI showed some abnormalities when she was born so I know that she could have some problems. We were told that sometimes these abnormalities can repair themselves so we just don't know what to expect.

Good luck on Thursday slushpuppie, they worry must be unreal.

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Good luck on Thursday.

Wishing you all the best for Thursday. x

Hi I am a mother of 2 boys with cp both prem and 2 with different types one with hypertonia the other hypertonic. Did ur wee on have pvl bleeds. In some cases they only class ur wee one as development delay until the age of 2. I recommend early intervention of a physio will help u greatly. Another MRI won't be preformed til they r 1. Does your child have any other problems apart from low tone in the neck. How are the limbs? Feeding? Hearing ? Eyesight? If your child is diagnosed with cp they will then be attending enable ireland crc etc all fantastic services. Please feel free to email me.

Hope appointment went well today - think of you x

Thinking of you today. Xx

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Well the consultant was fairly dismissive of our concerns. He said that dd is still so young and lots of babies don't lift their heads etc and that she looks fine. He didn't hold her himself however, he observed all of this from looking at her.
He said he will see her back in 3 months and we will know a lot more then.
I feel fobbed off.

slushpuppy if you really have concerns would you bring your dd to your gp and see what she thinks?
i found i was fobbed off too,

In the meantime how about trying an osteopath. I was exceptionally skeptical about it myself but Pamela Synge did wonders for our dd. Following each visit our DD was able to do things she couldn't before. Now I've no idea how quickly she would have got their otherwise, but it was quite startling - Pamela would say something like ' I'd hope she would be able to bring her hands together in the next week or so' and she would, same with lift her chin up, roll over, clap etc etc.

If it's a muscle problem from birth that realignment may help with, then it would be great to be started. Good luck, hopefully the Dr can see that everything is fine?

Just a suggestion you know that you can refer your own child for a review by enable ireland and they access her from head to toe for tone etc. Just a suggestion

Thank you Sami, rambles and pippi.
My gp is useless with babies and dd cries a lot and he just seems uncomfortable around her so I tend to avoid the gp unless absolutely necessary.
I will def look into an osteopath, sounds amazing.
I didn't know u could get your child assessed without a referral. I'm going to look into it.

I'm glad I posted here. Nobody else will listen to me! Dh just keeps saying that she will be fine but my instinct is telling me otherwise. I have other children and i am normaly totally laid back about milestones etc but this time something just doesn't feel right.
Thanks for listening

I have made an appointment with Pamela Synge. It's in 2 weeks. I really hope she can help. Dds reflux is getting worse and she spends most of her days crying lately

are you sure its reflex? my older 2 had severe reflux and when dd3 had same symptoms she was put on losec but made no difference i tried her on soya milk and she was a changed baby!

Are you giving her Losec and Gaviscon (or Zantac instead of Losec). If not, do this. Then get her onto a dairy free diet, if she is still only on milk and it's formula, move to Nutramigen or even better Neocate.

She sounds like my DD who had severe reflux, cried non-stop, muscle issues and dairy/egg allergies.

The combination of osteopath, drugs for reflux and change in her food to Neocate shanged everything.

I feel so sorry for you right now, it's a dreadful place to be and so stressful. But don't give up, there is always a reason and it's not okay that she is so upset herself. So keep pushing forward. It's great you have Pamela booked, it's worth a shot.